Children's Tumor Foundation

When Kristy Rath joined the Children’s Tumor Foundation NF Endurance team in 2009, she was looking for a way to take action after her daughter Jane was diagnosed with neurofibromatosis type 1 as an infan...

The Children’s Tumor Foundation is launching the Open Computational Collaboration for NF Multi-Omics Research (OCC) with the goal of better understanding how gene regulation shapes the different prese...

Hunter has lived with NF2-related schwannomatosis for most of his life.

Like many people with NF2-SWN, his experience has ...

On February 28, 2026, patients, families, and clinicians came together for a day dedicated to one shared mission: moving the needle on NF care. The Cleveland Clinic Neurological Institute and Cleveland Clinic Children’s NF Program, a member of the Children’s Tumor Foundation (CTF)

Ethan Lester, PhD, Massachusetts General Hospital, Harvard Medical School

The May NF Knowledge Series: From Isolation to Empowerment: Building Hope, Resilience, and Community in...