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Website title: The National Fragile X Foundation | NFXF
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Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July, Fragile X Awareness Month, but feel free to start early or hold your walk or gathering anytime! You can register as an individual, start a team, or join an existing team!
WHO: Anyone Anywhere!
In our ongoing effort to advance scientific understanding and advancing treatment research in all Fragile X-associated conditions and disorders, we are sharing information on an available funding opportunity.
The Fiscal Year 2026 (FY26) Research Funding Opportunities from the Congressionally Directed Medical Research Programs (CDMRP), Peer Reviewed Medical ...
Join us for a community update on the EXPERIENCE clinical trial program in Fragile X syndrome. Hosted by FRAXA and the National Fragile X Foundation, this webinar will feature Shionogi discussing the recently shared trial results, what is known so far, and what comes next.
The webinar will be recorded and made available shortly after the event.
Attendees are enc...
Congratulations to our 2026 Junior Investigators! These rising stars in the Fragile X field will join us at the NFXF 20th International Fragile X Conference, where they’ll have the opportunity to present their research and connect wi...
Shionogi, Inc. is releasing updates from EXPERIENCE-301, the adult study in ages 18–45, and EXPERIENCE-204, the adolescent study in ages 9–17. Please read their full letter here, and join us for a community Q&A session, hosted by the NFXF, FRAXA and Shionogi, on Tuesday, May 19, 2026.